Good morning,

Andrew's next doctor appointment is next month to have his eyes checked. 
Andrew continues with his therapy sessions at Northeast Rehab.

Yesterday, Andrew's geneticist called to provide the results of the latest genetic test. Unfortunately, the test did not provide any new information.  The test results will be sent to us this week via snail mail.  I will review the results and share any relevant information.

I will share with all of you my frustration with the insurance companies and the state Medicaid system.  We give Andrew hormone shots every night.  The cost of the supplies and hormones were covered by our primary insurance company, Anthem Blue Cross Blue Shield and Andrew's Medicaid provided by NH.  A couple weeks ago, Lara received a phone call informing her Andrew maxed out his medical/pharmacy benefit for the year.  The max is $2000. 

I am a systems contractor and have to purchase individual health insurance.  The insurance doesn't cover much considering the high cost of the premiums. 

When we first learned about Andrew's condition, we were advised to apply for NH Medicaid.  Andrew qualified within a month after applying based on all the records we provided NH Health and Human Services.  We have been working with Medicaid to have the program cover the cost of the hormones and supplies in full. We have been waiting almost 2 weeks for an answer form the program.  This is where we get stuck in bureaucratic, red tape hell where administrators with little knowledge try and play G-D with our son's health.  They need to make a decision so we can move forward.

Also, this country needs real and thoughtful healthcare reform.  Our primary insurance company has agreements with medical providers to pay less than they actual bill.  In other words, if we were to pay the bill, we may pay 2 to 3 times more than the amount the insurance company pays the medical providers.  That is incriminating to pass on overinflated costs to average consumers.

Right now we are using the last hormone cartridge with enough hormone medicine for 6 shots.  Hopefully, everything will be settled this week so we can continue with his shots without interruption.

Regards,

Jeff M