Friday May 1, 2009

Good morning,

This past week Andrew started eating Cheerios and stage 3 baby food.  We still need to put the Cheerios in his mouth.  Lara threw out all of the baby bottles.  Andrew only drinks from a sippy cup.  The adjustment to the cup was hard, however, it will be good for his speech development.

We are still waiting for Andrew's glasses to be ready.  Once he has his glasses, he will stop squinting and his eyes will probably feel better.

BIG NEWS!  The web site and blog are now listed with Google.  This morning I read a comment on the blog from a mother with a son living with a different deletion.  Both her son And Andrew are the only ones with their respective deletions.  It touches my heart to know this site is reaching other people in the world.  Through the site and blog, I hope to continue to promote Andrew's rare chromosome disorder.  In addition, the site can bring other chromosome disorders to light.  Eventually, this work may prompt scientists, researchers and doctors to look for ways to help these children with new and developing technologies.

Regards,

Jeff
 

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Comments

  • 5/2/2009 8:26 AM Jennifer Holzer wrote:
    I think it is wonderful thing your doing bring awareness about chromosome disorders. It really touches my heart that you have such devotion to your son and to bring chromosome disorders the attention it deserves.

    Even though i have not been affected by chromosome disorders, I have already taken the liberty of adding this web site to my favorites so i be more educated.
    Reply to this
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