Welcome to Andrew's new blog

I am Jeff Marx, Andrew's father.  This is the inaugural posting.  The blog is dedicated to Andrew Marx and his 2q35 deletion.   

Lara (my wife) and I will add blog entries sharing Andrew's progress as he continues to live with his genetic condition. 

We understand there are many families out there raising children with unique genetic disorders.    Just know that we also have a unique child.  We hope in time to find others with the same or similar genetic condition.  Then we can be a resource for each other.

Feel free to add comments at any time.

Warmest Regards,

Jeff M

Posted by Jeff at 4/18/2009 1:29 PM
Categories: uncategorized
 

What did you think of this article?




Trackbacks
Trackback specific URL for this post
  • No trackbacks exist for this post.
Comments
Display comments as (Linear | Threaded)

  • 4/19/2009 7:13 PM Rebekah Labell wrote:
    We will be so grateful to have regular updates on Andrew and are so privileged to have you guys as friends! We love your family - thank you for sharing Andrew's story.

    The Labells
    Reply to this
  • 4/22/2009 12:34 PM Steve wrote:
    It's great to see your blog up and running. I'll be watching for updates to Andrews condition. Hopefully someone else in need will find this blog one day and find inspiration to stay positive.
    Reply to this
  • 4/30/2009 2:04 PM Michelle wrote:
    Hello, I found your blog through google. Our son is also the only documented case with his particular deletion, 14q32.31. He also happens to be exactly 1 month older than your son I like your blog, I hope, like I hope with ours that someone will find it helpful and inspiring when they find themselves in the same position in life.
    Reply to this
    1. 5/1/2009 6:50 AM Jeff wrote:
      Michelle,

      Thank you so much for your kind words. This is a newer site. I, like you, hope to reach out to others about rare chromosome disorders and my son's specific condition (you sharing your son's experience). My heart goes out to you knowing that your son is the only person with his disorder. Please check-in often. Also, send me a link to your blog and I will take a look.
      Email:jmarx@2q35deletion.com
      Reply to this
      1. 5/1/2009 2:34 PM Michelle wrote:
        Sorry, I thought I had posted my blog
        It is http://raisingmikah.blogspot.com/
        Reply to this
Leave a comment

Submitted comments are subject to moderation before being displayed.

 Name

 Email (will not be published)

 Website

Your comment is 0 characters limited to 3000 characters.